Saving Mila

Hi, folks!  The following is a guest post from Mila’s mom, Julia, from Mila’s Miracle Foundation.  Please share and reblog this very important cause to all of your friends and followers. Thank you!

Saving Mila   

Mila

There’s no other way to put it—my 6-year-old daughter, Mila, is dying. I lie by her side every night when she sleeps and my heart bleeds. My face burns from the tears. There are no words to describe being told that you will lose your child to a horrible genetic condition – Batten Disease. How could my daughter, the one who was running around, singing songs and laughing with her friends until just a year or so ago, be losing her abilities and soon her life? Mila has now lost her vision, needs help walking and can barely communicate what she’s thinking. But her light is still bright and her laughter and smiles remind us every day that she’s still strong – our little fighter.

We didn’t accept what the doctor’s told us – that there was no hope. We worked day and night to put together a team of scientists, raise $800,000 to start funding them and get a gene therapy trial on the calendar for next year. Others trials like ours have stopped and even reversed symptoms in children with similar diseases. We want to give this second chance at life to Mila and kids facing her devastating diagnosis!

There is a path to a cure for Mila and we’re funding it! However, if we don’t raise an additional $1M by the end of September for the trial, everything stops. Please consider GIVING whatever you can and SHARING our GoFundMe campaign with your network – www.gofundme.com/savingmila.

YOU can help save Mila and the other children like her!

With gratitude + determination,

Julia – Mila’s Mom

President + Founder – Mila’s Miracle Foundation

 

 

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About Suzanne Gunter McClendon

I am a South Carolina native now living on the Texas Gulf Coast. I have been married to David for just over 32 years. We have 4 surviving adult children and two children-in-law. At this point in our lives, we are adjusting to an empty nest. I enjoy reading, writing, photography, digital art, fiber arts, and much, much more.
This entry was posted in 2017, Causes, Fundraisers, Health, Stop Batten. Bookmark the permalink.

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